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Support services and organisations

Local organisations

National organisations

Support if a parent is in prison

The following organisations are able to offer support if your partner or a parent is in prison:

The following bereavement charities offer help, support and information for parents, siblings and other family members who are grieving the loss of a child.

All helplines are run by trained parent volunteers, who themselves have sadly experienced the loss of a child. Many of the websites have sites specifically for siblings to access support. Others run online forums, providing bereaved families the opportunity to make contact, share experiences and offer support to one another.

Financial support following a death

  • Child funeral charity offers financial assistance for families with funeral payments for a child under 16
  • Funeral payments offer help for those on a low income for payment towards funeral expenses

Carer 2 Carer is a parent-led group that aims to support parents and carers who have a young person between 14-25. It also invites speakers to talk about a number of topics such as:

  • changes to the Occupational and Physiotherapy Service once someone is over 18
  • helping young people to find voluntary or paid employment
  • assistance from the Community Nursing Team and Acute Liaison Nurses
  • changes with council tax once someone reaches 18
  • information about the difference between Power of Attorney and an Appointeeship

Carer 2 Carer also attends Local Authority meetings to ensure members are kept up-to-date with transition changes, as well as giving feedback. 

The group meets during term time at:

Enfield Carers Centre
Britannia House
137-143 Baker Street
Enfield
EN1 3JL

For more information, call 07816 070 098.

Haven House Children's Hospice is run by Sue Irwin, a registered nurse and health visitor, along with friends and colleagues. The charity provides free care to life-limited children and their families.

Noah's Ark Hospice is a community based hospice service providing support for children and young people with life-limiting or life-threatening conditions and their families in the Central and North London boroughs of Barnet, Camden, Enfield, Haringey, Islington and Hertsmere. The children they work with have a range of conditions and often have very complex needs. Their services aim to help the children, their siblings and parents make the most of the time they have together, and we continue to support the families after bereavement.

Rainbow Trust’s family support workers join the family in their own home and provide practical support when needed. They may attend hospital appointments with parents, sit with your sick child to give parents a break or take worried siblings out for the day.

The Sapphire Service provides health care assessments, nursing support, and play and bereavement services to families. The team aim to support children who need palliative care and their siblings, or children who meet the continuing healthcare threshold.

Children who have multiple complex health needs may meet our criteria for continuing healthcare funded support. This enables families to receive care for their child, which is currently provided by external agencies.

Children are assessed by a nursing team and any necessary funding is agreed. This is reviewed regularly with the family and may change depending on the child’s health support requirements.

Assessments are usually carried out within 13 days and reviews within five days of the planned date.

For more information, contact the team on 020 8375 2945.

Having a child with special needs can be challenging, and whilst families can be a source of support, sometimes getting understanding can be problematic.

Through meeting other parents and carers, learning from them and sharing similar experiences, you know you are not on your own. Our Voice is a parent-led organisation working with parents and carers, as well as statutory and voluntary sectors. 

Our Voice works closely with Enfield Council to implement new SEND Reforms and ensure that parents’ voices are heard. They also work hard to improve services for children and young people with disabilities or special educational needs in Enfield. 

Our Voice offers:

  • coffee mornings in your school to support parents and cover a range of topics
  • a family network support helpline
  • network meetings, covering different themes and topics
  • consultancy services, such as running parent consultations or training

For more information, email info@ourvoiceenfield.org.uk.


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